LONDON: Charlie Gard, the terminally-ill British baby whose plight drew sympathy from Pope Francis and US President Donald Trump and sparked a debate about medical ethics, died on Friday, his mother said.
His parents, Connie Yates and Chris Gard, had fought a lengthy legal battle to allow him to be taken to the United States for treatment for a rare genetic condition.
But despite the international attention brought by his case, he died exactly one week short of his first birthday.
“Our beautiful little boy has gone. We are so proud of you, Charlie,” his mother Yates said in a statement.
A court had ordered that the 11-month-old should be moved from hospital to a hospice, where his life support was withdrawn.
Supporters around the world donated £1.35 million (US$1.75 million, 1.5 million euros) via an online fundraising site to support his parents and their efforts to keep their son alive, while 350,000 signed a petition demanding that he be allowed to receive experimental treatment in the US.
Following news of the boy’s death, Pope Francis, who supported the campaign, tweeted: “I entrust little Charlie to the Father and pray for his parents and all those who loved him.”
British Prime Minister Theresa May said she was ‘deeply saddened’ by the death while US vice-president Mike Pence wrote he was: “Saddened to hear of the passing of Charlie Gard.”
Gard was born on August 4 last year with a rare form of mitochondrial disease that causes progressive muscle weakness, including in key organs such as the heart.
He was admitted to hospital at eight weeks old and his condition progressively deteriorated.
Gard’s parents fought a five-month legal battle for him to be taken to the United States for experimental treatment. They lost a series of appeals in British courts and the European Court of Human Rights in Strasbourg.
Their campaign led to offers of help from the United States and the Vatican, leading the hospital to ask the courts for a final assessment of any new evidence.
On July 2, Pope Francis called for the couple to be allowed to ‘care for their child until the end’, saying he had followed the case with ‘affection and sadness’. — AFP